It's been three weeks since Karen left us and we still are ambushed daily by new ways we miss her. Just last night, I was filling in Miranda on Chris Isaak (we had heard a bad arrangement of Wicked Game) and I immediately wished Karen were around so she could launch into her rant about Mr. Pretty Boy whining about being lonely while surrounded by topless supermodels. It's the countless small things like that which upset our equilibrium multiple times a day. Bigger things--like the ongoing ordeal of cleaning out her closet and dresser--just smash me flat and leave me near-mute for hours.
Speaking of my voice...I think it's about time I shut up.
I started this blog three years ago to keep family and friends informed on the shifting state of Karen's health and our family's efforts to deal with it. While I've always done all the writing--usually without any sort of consultation with Karen--it was always my feeling that this blog represented both of our voices. With hers now silenced, it seems wrong to continue.
And frankly, that story has come to a close. I don't know what story lies ahead (I'm betting it's a protracted horror tale), but I know its place is not here. And probably not in another blog because I'm disinclined to write something I personally wouldn't bother to read.
And so, on behalf of myself, my kids, and Karen, I bid you all a fond farewell. I will never be able to adequately thank everyone who helped us endure the last three years. For everyone that pitched in on the Meal Train to all the folks that helped distract me with Words With Friends games to the poor souls that actually talked to my woebegone self on the phone periodically, I extend my deepest, most heartfelt thanks.
I hope that no one who has read this blog ever has to go through this.
I hope that if you have to, you have the great good fortune to do it with a person as unflinchingly brave and unconditionally loving as Karen.
I hope to find my way out of this mess and into the life that I know she wanted for me.
Yippee Ki-Yay, motherfuckers. Rock on and die hard.
Distant family and friends started arriving Thursday and on Friday they were all pitching in to help make our Saturday observance go over as well as possible. I spent the day announcing that I was not going to do anything--and I didn't. It wasn't that I didn't want things to go well but I was focused on the memorial and delivering the eulogy and I was surprised to find I didn't have the bandwidth to give even a fraction of a fuck about other things. I am grateful that so many people pitched in and didn't care that I was opting to socialize while they tidied and organized.
Like I said, I was pretty much obsessed with the eulogy. When Karen and I first reconnected more than a quarter century ago, I was super-broke so I wrote a book for her for Christmas (this remains the only "novel" like thing I've ever written). Over the next several years I'd write a lot more for her. This was the first time she'd ever actually requested I write her something and given the situation I felt tremendous responsibility to live up to her clearly confused perceptions of my typing prowess. And I felt overwhelming pressure to do right by her.
And in fact, that pressure extended to the service itself. Late Friday night, after another self-disgusted pass on the eulogy I had a moment of panic and worried that everything we were doing was going to go terribly wrong. Karen and I had made some unusual choices and I was concerned that we would offend the church people attending from St. Paul's and maybe even piss off the funeral home.
In the end, I changed nothing and went with it. Everything followed the plan Karen had wanted and approved.
And everything went well. No, actually, everything went magnificently.
Half an hour prior to the official start time of 1PM, we began playing music. I'd put together this playlist about two years ago and every song has a purpose and most have some intense personal meaning (I cannot listen to the Lou Reed songs here without utterly losing my shit). Accompanying the music was a projected slide show of photos of Karen throughout her life, some of which you can see throughout this blog post.
Here's a link to the playlist: Bon Voyage Entrance. Quick note: the last song was actually played as people left, it was not part of the walking in playlist.
After that bit of cheeriness, it was time to set the tone for the memorial that would follow. To that end, Karen had chosen the following video to be played. This was the real test--and the laughter that greeted the video was just about the most welcome sound I'd heard in ever.
In our infinite consideration and wisdom, the program required the reverend from Karen's church to somehow follow that bit of solemn reverence. Somehow she pulled it off with tremendous aplomb.
This was followed by readings and shared stories from the attendees. Dash led off the Open Mic section of the celebration with a fantastic off-the-cuff speech expressing his determination to remember the truth of his mother. Everyone that spoke did so from the heart and while there were plenty of tears, there was more laughter. The room was filled with warmth and a sense of togetherness and community that surprised me but when you consider the genesis of it all--Karen--it really shouldn't have been so unexpected. She had brought people together and inspired happiness throughout her life. Why should have this day been any different?
All in all it didn't just go well, it was wonderful. It was a comfort. It was cathartic. And the hours we spent afterward at home, with so many friends and family remembering her and just having fun...well, that was extraordinary. I will never be able to thank Karen enough for providing me and kids with such a great day.
As for the insurmountable mountain that was the eulogy, I managed to deliver it without breaking down. People seemed to receive it well. I think I did well by her and that was all I wanted to do.
I've copied my eulogy below. This is more or less exactly what I said although I added and edited a bit on the fly.
EULOGY
Early on in our New York life, well before we got
married, Karen and I saw Nashville at
the Film Forum. She’d never seen the movie and I had been so young when I’d originally seen it I’d basically forgotten it. When we stepped outside the
theater it was a freezing cold January day but it was sunny. We started talking
about the movie and it turned out the highlight for us both was this one scene
featuring Keenan Wynn.
I remember this for a couple reasons. First, it was
a great walk home. I’d lost my gloves so I stuffed my hands in my overcoat
pockets and she hung on my arm the whole way back. Every time we had to wait to
cross a street we’d embrace and a few times we missed our light but that was
okay because we just extended that embrace while we waited for our next chance
to cross.
Second, I remember that day because it notably created
our personal shorthand for those very rare and intense moments of feeling you experience
with art and artists. We called them “Keenan Wynn Moments” and we were pretty
stingy when it came to doling out the coveted Keenan Wynn status. Few things
were—or are—Keenan worthy.
But with the benefit of hindsight filtered through
the lens of, let’s say, recent events, I’ve come to believe that these moments
were never about Keenan Wynn or Brando or Rickie Lee Jones or whoever but instead
they were really all about Karen. These were actually Karen Coffey moments
because without her they never would have resonated so deeply with me. If I
didn’t share something with her it was almost as it if never happened. And during
my reflection over the last couple of weeks, I’ve come to realize that that sort
of intense clarity and impact of the moment wasn’t limited just to these rare
isolated instances but, rather, they were just the most prominent of the daily
remarkable occasions that defined our 37 years of caring for each other.
So, really, my life has been all about collecting as
many of these Karen Coffey Moments as I could, from the time when I was 15
years old waiting every morning on the corner of Orange and Second so I could
walk her the last couple blocks to school to a little more than two weeks ago. The
most keenly felt and most gratifying experiences in my life were all shared
with her and I’d like to share two that bookend our marriage.
First…Over the course of our honeymoon there were a
lot of mishaps—a tennis injury that I inflicted upon her, a dodgy hotel, a massively
delayed flight, and a very very unfortunate overnight journey on the Orient
Express—but what I remember most from that trip is one evening Karen and I spent
in Salzburg. Every August there’s this month-long Mozart festival and we had
picked up tickets to a string quartet performance at this castle that sits on a
large hill high above the rest of the city. At intermission, the two of us
wandered out onto the, I don’t know, I guess you’d call them ramparts or
something and we looked down at the city. There was a full moon above us and
below us a layer of fog rested atop the city.
We looked down at Salzburg and marveled at how
beautiful it was, with these thousands of sparkling lights trying to pierce the
fog over this classic kind of storybook village. They shot Sound of Music
there. Anyway, we stood there for a long time, right up until they announced
the performance was about to begin again. But right then, somewhere in the city
a symphony orchestra was performing Beethoven’s Ninth and just as we turned to
return to our seats they hit the Ode to Joy and all of these voices just came swelling
up from down below us. So, while everyone else at our concert took their seats,
we stayed outside. Just the two of us, no one else. We stayed out there until
the symphony ended and was replaced by just thunderous applause and cheers from
what we liked to consider as the concert’s secondary
audience. We cheered and applauded, too, Karen laughing and clapping with
her hands above her head. After that, we spent about five minutes or so trying
to figure out how to get back into the castle. It wasn’t easy—those places are
literally built to keep people out. And I think Karen needed to use the
bathroom so that made our inability to get inside just a little more urgent and
a little more entertaining.
Still, it was magical. It was. I was never more in
love with her than at that moment, some eight days give or take into our
marriage. And honestly I was never any less in love with her, either.
More recently…
Karen’s last responsive day was October 19, which
was just two days before she died. She had the strength to do just three things
that day. First, she smiled when our longtime friend Cliff visited and held her
hand. Second, she opened her eyes and whispered “Hi” to her daughter who was
perched right next to her bed and chattering away at her. The third thing came
later that night. Understand: Karen was really struggling with pain at this
point and unfortunately it was necessary for us to periodically move her for
her longer term comfort, but moving her hurt. Enough for her to cry out at
times. We apologized all the way through it, each time we did it.
And yet…this one time, this one last time, as I leaned
over her frail and broken body in order to lift her just enough to shift her
just a little bit, she somehow managed to get her left arm across my back. Her
fingers spread out and I could feel her pressing her palm against my back. 48
hours before she’d leave us, she wanted me to know she loved me. And to
reassure me that it was okay to move her. She was taking care of me.
It was her
last conscious act. It was my last Karen moment.
That final action speaks to the core of who my wife was,
why she mattered to so many people, and while she’ll continue to be a
touchstone in our lives. I’ve never known anyone who was so deliriously and
joyfully in love with the world and who and what it offered. The breadth of her
unbridled love is exhausting, frankly.
Just to illustrate this, a few things…
Karen loved:
Leonard Cohen, Aimee Mann, Barbra Streisand, Marlon
Brando, Vanessa Redgrave, William Shakespeare, Anton Chekhov, William Faulkner,
Gabriel Garcia Marquez, Louisa May Alcott, Einstein on the Beach, Laurie
Anderson, the IT Crowd and all of the Oz books.
She loved Game of Thrones—both on TV and in print.
She loved The Lord of the Rings—on screen and in print, although, honestly, it
was the movies (especially the extra-long director’s cut) which were dearest to
her heart.
She loved working in her garden. She loved her roses
and inexplicably loved the lilac bushes I bought her that refused to bloom. She
loved her weekend trips to the nursery, planning our new front yard, and
dreaming about putting a pool in the back.
She loved Buchhardt Gardens, the butthole of Sauron,
going on cruises, suites at the Bellagio, and she loved all the fantastic Saturday
nights we spent in New York with Vito and Cathy and Rayleen and Cliff.
She loved matzah ball soup, Marie Belle chocolate, holiday
dinners at the Moonstruck Diner, anything dinners at the French Laundry, Girl
Scout cookies including the weird kind of nasty ones, real deal barbecue,
John’s Pizza whole pie not a slice, and every single thing at the Festival of
Pies.
She loved Die Hard, Die Hard 2, Die Hard: With a
Vengeance, Live Free or Die Hard. But A Good Day to Die Hard…eh…not so much.
She loved Sour Diesel, Grandaddy Purple, Jack Herer,
and especially Chem Four. I’ll be honest here: she just loved smoking weed. It
might have taken her 50 years to get around to it but, man alive, did she ever
become a pothead. You have never seen anyone enjoy the act of smoking a joint
more, announcing “Pot is great” while rolling the smoke around her tongue and
beaming. She loved trying to blow smoke rings even though she never managed to
do it.
She loved the Chicago Cubs, the Dallas Cowboys (especially
Emmitt Smith), Torvill and Dean, the Olympics in general, and became a
late-in-life boxing fan with a deep affection for Gennady Golovkin, Vasyl
Lomachenko, and Robert Guerrero. She never cared for Floyd Mayweather, though,
but that probably speaks well of her.
She loved decorating her home, even though she
didn’t have a real flair for it and relied too much on mirrors. She tried to
spruce up our bathroom by placing a mirror over the toilet but she put it at
such a low height that basically any man who happens to stand while using said
toilet is ambushed by a moment of the most intimate sort of self-reflection.
She loved everything I ever wrote even when I
didn’t.
She loved Maggie and Zoe and Smokey and Ivan and
Otto and Calvin and Alice. She loved every dog at ARF and she loved visiting
ARF just to see them.
She loved working at Synergy and Wells Fargo because
she loved the people she worked with, finding them to be a reliable source
of both joy and inspiration.
She loved her parents.
She loved her sisters.
She loved our brave, heroic children with a ferocity
that was almost frightening.
And for some reason, she loved me.
And now she’s gone. Even though, in a way, it
doesn’t feel like it.
One of the weirder things of life since Karen passed
has been a stubbornly persistent sense of her barely removed presence. A
feeling that she’s somewhere in the vicinity, maybe just around the
corner or in the other room. I feel her presence in the universe so keenly I
keep expecting her to walk in the door.
And I have given up trying to talk myself out of
this. That she’s not here. Because I think she hasn’t left. She is, in some
strange and wonderful way, still so very present. Her love endures where her
body does not. I see it in the faces of everyone here. I have experienced it
with every kind act you fine people have performed on behalf of my family over
the last three years. I live it every time I talk to our children, who are just
as delightfully idiosyncratic and flat-out amazing as she was.
We were married for a long time and Karen’s
love—enthusiastic, unflagging and limitless—buoyed me through every day. It
buoys me still. I feel that strong, certain love as surely now as I ever have. The
difference now is that I cannot return it. We cannot return it. That’s the
heartbreaking part.
But while my heart is broken it is somehow also full.
Full of love for her and full of the love she poured into me each day we were
together. So while I am torn with grief, what I feel most deeply within me is
gratitude.
Karen loved traveling so please help us send her off
in style as she departs on her most adventurous trip ever. Bring your stories, your
fondest memories, and maybe a generous supply of tissues. After we send Karen
off properly, we’ll decamp to Chez Coffey for foodstuffs, beverages, community,
and a liberal application of life-affirming hugs.
We'll be holding our celebration on Saturday, November 7 at 1 PM at Hull's Walnut Creek Chapel. The address is 1139 Saranap Avenue in scenic Walnut Creek, CA.
Hope to see you there!
P.S. In lieu of flowers, Karen has requested donations
be made in her name to Holden High School (link HERE).
With about half an hour of time to kill prior to auditions for The Crucible in high school, I was being typically loud and rambunctious and walking all around the auditorium on the arm rests of the seats. I passed this girl with curly hair and she asked me who I was and what the hell I was doing. We began to talk. I asked if she wanted to know a secret and when I shared it with her she told me she shared the same secret. I was 15 and she was 16.
That was how Karen and I met.
When devoted stoner Bart Berry still didn't know his lines three days before opening night, our director fired him. I was promoted from the smaller part of the feisty and crushed-by-stones Giles Corey to take over Bart's bigger role of John Hale. Karen offered to help me learn all those new lines over the few remaining nights before we opened. Every evening at her house we would go through the play over and over again, running lines for hours. We stopped only to make out the way high schoolers do, meaning: frequently and for a long time.
12 Years After High School
That was how Karen and I fell in love the first time.
Twelve years later, we reconnected when Karen and her roommate visited New York in early September. She was in the city for three days and we spent as much time together as possible. I got people to cover my dinner shifts at work and freed up all of those days. She eventually returned to Tucson and we racked up some major long distance bills. She came back to NY for four days that Halloween and we went to the parade and we marveled at how my boring ass temporary roommate managed to find a way to spend the whole evening with models while dressed as a cow.
That was how Karen and I fell in love the second time.
The following November I artlessly asked Karen if she wanted to get married during one of those epic long distance calls. On January 1 she joined me. we married in the summer, and we eventually moved into a four room railroad apartment in Chelsea. We were young, broke, crazy in love, and living in the greatest and most exciting place on this or any other planet. It was the best time of my life and it just kept going, at heart continuing that same initial conversation through 25 years of marriage, enriching it with the addition of our children's unique and brilliant voices a few years in.
And that was how Karen and I lived.
At 9:11 this evening the beating heart of my life and family finally stopped. She was attended by myself, her children, and her dearest friend, each one of us touching and stroking her, telling her how much we loved her. She craned her neck as if to see something distant and then she was gone.
I went for a bike ride this morning and my iPod greeted me with this Lavender Diamond song because the universe apparently likes a good joke. Enjoy, comrades!
Yesterday Karen slipped further away from us. Our dear friend Cliff (one of my two best men at our wedding) tacked a visit to our home onto the end of a very long day that included a red eye flight from Hawaii, moving into a temporary apartment, and a full day's work. He took Karen's hand and said her name and she opened her eyes and smiled. Cliff leaned over to kiss her but she was pulled back into the fog before his lips even reached her forehead. Later that night, Karen would whisper a slurred "hi" to Miranda. She hasn't spoken since.
The fog she is lost in now is no longer a pharmaceutical one. For the first time since hospice started she slept through the night without any middle of the night or early morning pain scares. She went longer without pain meds than she has in forever. It is clearly the disease keeping her down now. Still, it was, thankfully, a peaceful night.
Well, for her anyway. I had a pretty hard time falling asleep myself. Karen's hospital bed is right next to mine and her ongoing decline has left her with a ragged nightmare of a periodic wheeze. That death-rattle-with-training-wheels is actually just a wee bit more ghastly to sleep next to than you'd imagine. I'm pretty tired today but I've been running on fumes for at least a week now.
But it doesn't look like Karen will be keeping me up much longer (though I'm still not expecting to get a whole lot of sleep anytime soon, like, oh, the balance of 2015 at least). She goes long stretches without taking a breath and when she does it is that tortured rattling mess. She is uncommunicative and does not respond to our voices or anything else. Her fingers have turned blue.
I imagine we'll be making our final goodbyes relatively soon.
Well, the good news is that Karen did wake up again on Sunday (yesterday) and the day was sprinkled with fleeting windows of lucidity and engagement. These brief interactions with Karen met our new, woefully low criteria for what passes as a "good day" so we were pretty grateful for them and took advantage at every opportunity.
Well, maybe not all of us were grateful, at least not immediately. Dash made the mistake of wandering into our room to give his mom a hug and kiss only to get ambushed when Karen clutched his arm and began talking to him. I stopped folding laundry and excused myself from the room. About ten minutes later he emerged, clearly rattled and a little hoarse of voice. Throughout Karen's illness Dash has insulated himself from it as best he can, only occasionally allowing us to fill him in on the most basic details. He's been a skipping stone for the last three years. touching down as briefly as possible before jetting away until circumstance and the laws of nature force him to skim across the surface again. Yesterday that stone finally plunged into the water.
As for Miranda, she spent time with Karen going through old photo albums as they used to do. And at one point in the day, Miranda was able to rouse the rowdier side of Karen. Since her mother has been struggling mightily to remember things of late, Miranda's innocent query about whether she remembered something stirred something in Karen (who remembered, by the way). Thinking someone had been slandering her memory, my lovely wife announced, "Tell that bitch ass to shut her stupid mouth." So, clearly, not everything has changed for the worse.
And some things, such as, oh, let's say, ME, are just as terrible as always. There seems to be a bit of cosmic tomfoolery at play right now, with both my beloved Mets and her beloved but clearly doomed Cubs battling it out in the playoffs. Decorum would suggest that I should be rooting for the Chicago team but not only am I not, I am needling her about how the Mets will boot the Cubs back to Chi-town and baseball irrelevance in just a few more days. She knew what she was getting into all those years ago and I think she'd be disappointed and/or locked into some kind of Invasion of the Body Snatchers type panic if I acted any differently now. I will say in my defense that I have agreed to cheer on the Cubs if they make it to the Series. (But, man alive, I hope they don't because I could really use a Mets championship right about now).
Margaret, Karen's closest friend since high school, arrived late Saturday afternoon from her home in not-too-distant Chico. Margaret and Karen had discussed having her present at the end so I called her up Saturday and told her there was no time like the present. Having her here has been a tremendous help. As a respiratory therapist, Margaret has all kinds of nurse training and her input has been invaluable in terms of keeping Karen comfortable and shoring up the finer points of care that I would never have even considered. Between the two of us--abetted by Miranda's frequent assistance--we seem to have Karen pretty well taken care of.
That said, we are clearly facing an end date. Karen has not had any food or water for days and her kidneys clearly seem to be shutting down. Her body temperature cycles between hot and cool (she dipped down to 95.7 degrees yesterday afternoon). Our hospice team has told us there are days left, roughly a week or so from that last drink of water which puts us somewhere mid-week for the big wrap-up to our sorry little journey. Tragically, those windows of lucidity now seem to be largely shut. While there will probably be a handful of moments where Karen is communicative today, they will be brief and far between--she is clearly flagging now.
And those windows are unlikely to open again. At all. Karen's pain keeps escalating and she needs larger and larger doses of meds to control it. Starting tomorrow, we will be initiating palliative sedation. This is a deeper level of sedation that will alleviate her pain but will knock her out cold. She'll stay that way, probably slipping into a coma that we probably won't even recognize as such, until she dies.
About that palliative sedation...Karen was unable to talk to the doctor or nurse about it during their visits this morning. I had talked to her about it during the windows I had over the last couple of days. With Karen so frequently confused, I've adopted a policy of polling her multiple times on bigger issues like this, essentially compiling a number of "votes" to guide our choices to make sure she's understanding and I'm getting the message right. This is something she very strongly wanted--the episodes of pain that grip her and leave her writhing on her bed (the most movement she'll make in a day) have left her fearful of more.
But she couldn't make that request today. She wasn't engaged. So I told them to follow through. This is the first time I've had to make a medical call all on my own and I cannot tell you how relieved I was that I had the knowledge of what she wanted. Going forward, I'll need to rely on all those nightly conversations where we hashed out our cancer plans over and over again. I'll rely on that and my own sense of what she would want. I've known her 37 years, we've been married for 25. So I think I'll more than likely not totally screw it up. Still it's an incredibly intimidating responsibility.
Here's hoping I get it right.
Here's hoping we can see her home as peacefully as possible.
So much has changed in just the four days since I last updated this blog.
Karen has not had anything more than a few bites of food and a few sips of water since last Tuesday the 13th--for all intents and purposes she has stopped eating and drinking. She joined us for dinner (albeit she barely ate a thing) on Wednesday the 13th and since then she has not left her bed except to use the bathroom just a couple of times.
It all feels very End of Days. As I write this Karen is deeply asleep at around 12:30 PM after a kinda hellish night and I honestly don't know if she will wake and be able to interact with us ever again. We're just waiting to see. In a couple of hours she will be due for meds again and that usually stirs her from her slumber. I'm clearly no expert, but I'd guess there's a 50/50 chance she'll just keep sleeping right till the end.
Karen's pain has been an infuriatingly moving target. We have struggled to keep it at bay. Her dosages and dosage frequencies keep getting increased. With every increase we enjoy a day or two of substantial pain relief invariably followed by another day or so of waves of agony throughout her body, i.e. the pain is no longer localized in one or two spots like her head.
Part of the struggle has been getting her into a physically comfortable position. We have tried to maintain as normal a life as possible but last Thursday we had hospice deliver a hospital bed so that we can better find a posture that relieves her of pain and discomfort. Here's a big hearty THANK YOU to my videogaming career and the peerless Tetris skills it nurtured and developed which allowed me to reconfigure the bedroom just enough to allow her bed to fit next to mine.
And let me just share an aside as to how awful it is after 26 years of living together to refer to that sprawling, suddenly far too empty king bed as "mine" for the first time ever.
Most of the time Karen is sound asleep, her face slack and sagging in a way that I have never seen before. She trembles and jumps and jolts from a constant barrage of neurological misfires that at times are strong enough to briefly jar her awake. She almost immediately drifts off again, her brow furrowed with some unknowable worry. Her skin is dry and her arms are sleeved in delicate wrinkles like crepe paper. When she is awake, she generally is incapable of carrying on a conversation about much of anything unless it is to ask for pain meds. The pain is the only thing that reliably cuts through the fog these days.
But it's not limited just to physical pain. And that's not necessarily a bad thing.
Last night, Miranda and I were in my room with Karen and she was, as per the last few days, lost in the drugs and the ravages of her disease. She spoke but instead of truly talking she was only muttering "yeah" and "okay" over and over. It was too much for Miranda and she began to cry. I sat beside her and embraced her while she clutched her mother's hand. Through her tears, Miranda told Karen how much she loved her, how she knew she had always enjoyed her mother's unconditional support, and how much she was going to miss her. This was her goodbye (I'd said mine the night before). That cut through the fog like a knife and suddenly Karen was back. Her hands trembling and uncertain, Karen held Miranda's hand with one of her own and clumsily stroked her daughter's arm with the other. "I'm so sorry you have to go through this," she said more than once. It was the most she had spoken in 24 hours. She was, for about 85 seconds, completely present for her daughter. Then she slipped away again. My throat ached for about 20 minutes after thanks to how painfully choked up I was through all this.
Around 5AM Karen woke me to use the toilet. She was agitated and stressed but actually pretty communicative. Since she was up and it was roughly time, I gave her all her meds including her new big dose of methadone. I had to add the jumbo dose of dilaudid to that shortly after in an effort to dull the pain. One hours later she woke me in torment begging for more drugs. I checked with hospice and while they wanted me to wait until 7AM to give her another (but still early) dose of dilaudid I figured "Fuck it, it's close enough and she's in agony" and gave her another big syringe full of dilaudid. That did the trick and she slipped back into sleep.
She's been out cold since then. Her breathing is irregular and kind of shallow. From my very limited experience with this sort of thing--and I'd again like to remind you that I'm no expert so I could be way off on this--I imagine we are within days of the end of this nightmare. Which probably means we are within days of the start of a whole new nightmare.
